Millions live with sound sensitivity, loudness intolerance and pain from sound — but many suffer alone. This project collects anonymous data to show the world how hyperacusis affects peoples lives.
No names, addresses or identifying information are shown publicly. Data is aggregated only.
Why it matters
For some people, sound is not just uncomfortable — it can be disabling. Hyperacusis can make ordinary life difficult or impossible: working, studying, shopping, socialising, travelling, seeing doctors, or even tolerating voices at home.
People may need adjustments, remote work, sick leave, or may be unable to work.
Some can only leave home with major planning. Others become mostly or fully homebound.
Sound exposure can trigger worsening that lasts hours, days, weeks, or longer.
Many people are misunderstood by family, doctors, workplaces, and society.
These are early anonymous registry numbers. Percentages become more meaningful as more people submit data.
What it is
Hyperacusis makes ordinary sounds feel too loud, threatening or physically painful. For some it's loudness sensitivity; for others, sound triggers burning, stabbing, pressure, or long setbacks lasting days or weeks.
Many people are not counted. Some cannot work, study, socialise or leave home. Without data the condition stays invisible — to doctors, researchers, governments and the public.
Severity scale
A shared scale helps the data stay consistent across countries and people.
Daily life mostly possible.
Sounds are more uncomfortable than normal. Loud places may be avoided.
Requires planning.
Noisy environments trigger discomfort. May need breaks or protection.
Daily life significantly limited.
Many ordinary sounds are difficult. Exposure can cause symptoms for days.
Nearly homebound.
Ordinary sounds cause major discomfort, pain or setbacks. Leaving home is rare and difficult.
Homebound.
Confined to home. Everyday sounds cause severe pain or long setbacks.
Anonymous data from people around the world.
Self-reported, aggregated, and shown transparently.
Built by and for the hyperacusis community.
Clinicians can submit too — anonymised case data.
Two to five minutes of your time helps the world understand what living with hyperacusis is really like.
Add your data anonymously